Partnership with the International Progressive MS Alliance announced as part of World MS Day celebrations
The International Progressive MS Alliance, an unprecedented global collaboration of multiple sclerosis (MS) organizations, researchers, clinicians, pharmaceutical companies and people with progressive MS, has created a partnership with MULTI-ACT that was announced on the occasion of the World Multiple Sclerosis Day celebrated on 30 May 2020.
MULTI-ACT is working to transform the way research is done by designing a new model allowing for the effective cooperation of all relevant stakeholders that will be fine-tuned to be applied to the case study of multiple sclerosis. The ultimate goal of the project is to increase the impact of health research on people living with brain diseases by creating a disciplined, measurable approach to engaging patients in research. Even though collecting patient data has always been important in MS research, more fully engaging people affected by MS in all relevant decision-making stages of a project can enrich the research, enhance its relevance, and ensure that a research initiative reflects the goals, or outcomes, that matter most to people affected by MS.
“People affected by MS must be partners in research, and MULTI-ACT has developed guidelines to make sure it is done in the most effective way with the greatest impact. By connecting people affected by MS and researchers in new, more powerful ways, we can accelerate life-changing treatments,” said Jon Strum, a member of the Alliance’s Scientific Steering Committee and a person affected by MS.
Watch the Alliance’s announcement and the original news here.