NEWS     15 | 10 | 2020

World Congress of Public Health: MULTI-ACT holds workshop on Multi-stakeholder research initiatives for innovative healthcare

The 16th World Congress on Public Health 2020 was held virtually from 12 to 16 October under the main theme “Public health for the future of humanity: analysis, advocacy, and action”.

In this context, MULTI-ACT was pleased to hold a workshop entitled “Multi-stakeholder research initiatives for innovative healthcare”. The workshop included contributions on MULTI-ACT model and its application to Multi-stakeholder Research Initiatives in the field of neurological diseases.

1st Contribution: Enabling multi-stakeholder mission-oriented research

Dr. Paola Zaratin, MULTI-ACT’s Project Coordinator, delivered the first contribution. The objective of the workshop was to discuss how mission-oriented research & innovation can provide a massive opportunity to increase the impact of health research and innovation, grasp the public imagination and moving out of the silos.

2nd Contribution: Bridging research to care : the case of the MS Care Unit

During the second session, Prof. Per Soelberg Sørensen, Director of the Danish Multiple Sclerosis Center, highlighted the fact that treatment of multiple sclerosis (MS) has become increasingly multifaceted and comprises not only a variety of disease-modifying drugs with different mechanism of action but also a wide range of symptomatic therapies. Today, it is not possible for the family physician or even many general neurologists to master the current treatment algorithm, and this calls for the establishment of multidisciplinary MS Care Units.

3rd Contribution: Enabling science with and of patient input

Last but not least, Giampaolo Brichetto, MD, PhD, Clinical Director at Italian MS Society, had a presentation on how to enable science with and of patient input. What began as an extension of patient advocacy has now evolved into an emerging discipline aimed at understanding and incorporating patient needs and perspectives into the processes of developing, regulating, and delivering new therapies as well as improving care: the science with and of patient input.The recording of all the presentations is available here.